In addition to medication, I hope you and your doctor have discussed the benefits from a healthy diet, exercise and stress management. stay far from everything that would affect your thyroid's behavior. If you're looking for something to protect you this cold and flu season, I have had great success with black cumin seed powder. A bit late here but felt like sharing my experience with this. I'm stopping elderberry right now. I take it first thing in the morning and as a sublingual for better controlled absorption. I've been doing this for about year and my TPO antibodies dropped from a 355 to 200 within the first four months of taking it. Most likely your drugs were not approved in clinical trials based on patients like you. All information is observation-only, does not establish causal relationship, and has not been supported by scientific studies or clinical trials unless otherwise stated. Synthroid (levothyroxine), a thyroid replacement medication should generally be taken as follows: Take your dose of Synthroid first thing in the morning on an empty stomach, with a full glass of water. So if you experiment is going awry, stop now and give yourself time to recover. ELDERBERRY. I even went to a sleep specialist to get overnight evaluation and turned out that I was fine. But there are plenty of over-the-counter (OTC) medications for treating the nasal congestion that's a major symptom of these viral illnesses. I of course have and have had Hashimotos for many years or I would not be posting here. I get tested again in November and I have no doubt that it has dropped some more. All rights reserved. Possible explanations include switching between different thyroid medications, experiencing a sudden change in weight, or taking your medication with food, vitamin supplements, or coffee. The common black elderberry (Sambucus nigra) has long been used to reduce the length and severity of flu symptoms and studies. I don't have Hashi but had a partial thyroidectomy because of hyperthyroidism and nodules everywhere and I also had anxiety and panic attacks all the time. Every effort has been made to ensure that all information is accurate, up-to-date, and complete, but no guarantee is made to that effect. It's free, simple and anonymous. 8. Along with black cumin seed, I am gluten free and dairy free. This time last week I wasn't planning on writing a blog post related to viruses, but with a lot of people concerned about the new type of coronavirus I figured I'd go ahead and put this together. As I aged regular testing provided need for gradual small increases in dosage and at age 80 it is still doing a great job of keeping me active and feeling … 7 users are following. Elderberry also exerts anti-inflammatory effects, reducin… I have found that if I take anything that ramps up my immune system like elderberry, echinacea, or too many B-C vitamins that my Hashi's goes into overdrive. Our immune systems have pretty much turned against us and it's better to keep it on the weaker side. After a month I felt more anxious, a tightness in my throat, but my TPO antibodies remained steady. Elderberry refers to several different varieties of the sambucustree, which is a flowering plant that produces berries in small black or blue-black bunches. Usually, after a week of quiting I go back to what is "normal" for someone with Hashi's. With the exception of discussing proper thyroid medication dosing, the majority of my website and book's focuses on balancing the immune system. The effect of Sambucol, a black elderberry-based, natural product, on the production of human cytokines: I. I am signed off work right now as I'm choked up with swollen throat and glands, and laryngitis and feeling really bad. eHealthMe is studying from 8,359 Levothroid users now. generic drugs) are not considered. And I had one cold that was short-lived and mild. Oddly enough, the raw berries, bark and leaves are known to be poisonous, containing small doses of cyanide, and can cause stomach problems, resulting in nausea, diarrhea and vomiting. I grind up the seeds in a coffee grinder and take 5ml with honey or blue agave on an empty stomach in the morning and last thing at night. Patient aims to help the world proactively manage its healthcare, supplying evidence-based information on a wide range of medical and health topics to patients and health professionals. Different individuals may respond to medication in different ways. Any user experience and insight is appreciated! The most common type is Sambucus nigra, also known as the European elderberry or black elder. Do some research and see what you find. That is good advise to see a CBC after some weeks to see if the white blood cells or EOS rising. Journal of International Medical Research , 2004; vol 32: pp 132-140. Took it for months and couldn't figure out why I was feeling so bad. Levothroid has active ingredients of levothyroxine sodium. Supplements are never the whole answer to treat a medical condition. I will most certainly take you up on that and report back my results. appropriate medical assistance immediately. Indeed, elderberry may cause more damage and inflammation to the thyroid gland by supporting the immune cells that specifically attack your thyroid gland. Elderberry juice extract is POSSIBLY SAFE when taken by mouth for up to 12 weeks. It's not known if taking elderberry juice extract is safe when used for longer periods of time. Dx : hypothroidism : Medication : Tirosint 50 mcgs daily. At this point, we would like to clarify that you can’t treat thyroid problems by ingesting one particular drink, even if it’s natural and rich in a variety of different … Elderberry is generally available as a liquid, a syr… Posted I'm not a doctor and can't tell you if that's good or bad for you. Dosage of drugs is not considered in the study. Taking 60 ml a day for adults and 30 ml for children helps to facilitate a complete recovery, often in three days. I’m Sarah Hiner, President of Bottom Line Publications, and this is our Conversations With the Experts, where we get the … eHealthMe makes it possible for everyone to run their own phase IV clinical trial. It can help to reverse an iodine deficiency. Ginger. Best wishes.. Meds : 1/2020 : 100 mcgs tirosint : 5 x / wk. Patient is a UK registered trade mark. This medication contains elderberry. I didn't have fatigue, but it was difficult for me to go to sleep. Try our Symptom Checker Got any other symptoms? However, commercial preparations and cookedberries should have no cya… While it is generally common to see it used for hyperthyroidism, or overactive thyroid, it can be unsafe for those experiencing underactive thyroid problems. Patient does not provide medical advice, diagnosis or treatment. So how do you know what your drugs can do to you? And I had terrible sinus congestion that allergy medicines and decongestants had no effect. Do not eat or … Hi. Stock up on vitamin D3 and vitamin C as well. Elderberry is POSSIBLY UNSAFE when the leaves, stems, unripened fruit, or uncooked fruit is consumed. Ask your doctor if you should take your Synthroid or other thyroid medicine with your morning orange juice. Elderberry juice extract is POSSIBLY SAFE when taken by mouth for up to 12 weeks. That is amazing advise of which I have not heard yet. I would suggest that if you still decide to take elderberry, to make sure you get a CBC (complete blood count) and maybe even the thyroid antibody tests, every few months, just to make sure your not causing your immune system to overreact. Nettle. The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. Medicinal elderberries usually come from the species Sambucus nigra, which is native to both Europe and parts of North America.. 2 years ago, While raw elderberries are mildly poisonous, they can be made into a variety of supplements that have … Use of this site constitutes acceptance of eHealthMe.com's terms of service and privacy policy. There's no cure for the common cold or for its more serious sister illness, seasonal flu. Tried to wean down to 25 mcgs with TSH going up to 9.00 ish from 2.34 in 3 wks. The elderberry bush or elderberry tree yields the berries that are commonly used in syrups, jams and wine, among other medicinal and culinary delights. and Privacy Policy and steps will be taken to remove posts identified (I was gluten and dairy free for a while, but I didn't see a drop in TPO antibodies until I added black cumin seed ). So, I wouldn't advise to use elderberry. 2 / 20/2020 : no thyroid med x 1 … The study uses data from the FDA. Unlike those conducted by pharmaceutical companies or the FDA, here the trials you run are personalized to you. Overall Thyroid Health 7. Other drugs that have the same active ingredients (e.g. I always add one more to that list: Find ways to add meaning to your life — through work, relationships, volunteering … eHealthMe is studying from 80 Elderberry users now. It's not known if taking elderberry juice extract is safe when used for longer periods of time. I wish there were studies out there that showed biologically this phenomenon occuring. I had anemia so I tried a supplement liquid where the main ingredient was elderberry. Now you can run the trial to see how drugs do to you. I was diagnosed with Hashimoto's and took elderberry for a few months before I knew about the risks involved. Eur Cytokine Netw 2001;12:290-6.. View abstract. I am worried I am having the opposite effect with this experiment. But the truth of the matter is, that’s just not enough. It took a couple of months for the swelling and congestion to go away. Registered in England and Wales. However, my question pertains to the use of Elderberry with Hashimotos. It is known to be both an antiviral as well as a cancer fighting botanical. I myself have never taken elderberry with my Hashi's, but I do know that you shouldn't take things that make the immune system stronger because the stronger your immune system, than the stronger the attack would be on your thyroid and damage will come at a more considerable rate than with a weaker immune system. Upgrade to Patient Pro Medical Professional? Over the years I have had many of my patients with thyroid and autoimmune thyroid conditions supplement with turmeric. The use of plants for medicine dates back as early as 3000 B.C. But, this was right for me to respond so that someone else can learn from my experience. It is based on levothyroxine sodium and american elder (the active ingredients of Levothroid and Elderberry, respectively), and Levothroid and Elderberry (the brand names). generic drugs) are not considered. I suspect that certainly could be an issue. When you were on the elderberry, did you notice any abnormal fatigue, or actually catching more illnesses? 5000mg Black Elderberry (Sambucus nigra L.) extract. Our clinical information is certified to meet NHS England's Information Standard.Read more. There are many species of elderberries but black elder is the most common for medicinal use. There are many health benefits of ginger, and promoting thyroid health happens to be one of them. © 2020 eHealthMe.com. Definitely report back your findings, it would be interesting to see if you have improvement! The info I present is based on my own research and journey overcoming my autoimmune thyroid condition. It is based on levothyroxine sodium and american elder (the active ingredients of Levothroid and Elderberry, respectively), and Levothroid and Elderberry (the brand names). Use of the forums is subject to our Terms of Use Turmeric is one of the most well known herbs, and there are thousands of research studies showing its benefits. Patients received 15 ml of elderberry or placebo syrup four times a day for 5 days, and recorded their symptoms using a visual analogue scale. Hx : 2/2020 : requested to wean off thyroid med following Dexa results : Osteoprosis @ L1 to L4 in Jan . Always speak to your doctor before acting and in cases of emergency seek Hope this helps. Negative Effects of Elderberry. Ginger is rich in zinc, magnesium and potassium — nutrients that the thyroid … I've read of course the warnings that it may cause an immune overreaction, but does anyone specifically have experience taking Elderberry and having a negative reaction with their Hashi's? Reviewed by Melinda Ratini on April 16, 2019 I took 10ml everyday. Hashimoto's thyroiditis is an inflammatory condition in which the immune system attacks the thyroid gland, usually causing destruction of the thyroid cells and low thyroid hormone levels. The berries are very bitter and should not be eaten raw because when uncooked they contain a chemical similar to cyanide. Natural Standard Patient Monograph: “Elderberry.” Zakay-Rones, Z. Nettle is beneficial for overall thyroid health thanks to its high iodine content. respect of any healthcare matters. Keep out of reach of children. It is recommended that patients use the information presented as a part of a broader decision-making process. in some cultures, according to the University of Maryland Medical Center. And making nettle tea is easy. But because turmeric is poorly absorbed, if you take a turmeric supplement you need to make … The use of the eHealthMe site and its content is at your own risk. The goal of this study was to determine the effects of powdered black cumin on thyroid … The study uses data from the FDA. Nigella sativa is a plant that grows in Europe and Asia and has been used to treat inflammatory disorders. The study is created by eHealthMe based on reports the from the FDA, and is updated regularly. In fact, before the most recent type of coronavirus was … Most decongestants are safe and effective for the majority of folks who take them, but for those with an overactive thyroid … This tree is native to Europe, though it is widely grown in many other parts of the world as well (1, 2). Many of elderberry's health benefits can be attributed to anthocyanin. You will in time. Black cumin seed has also been apart of several clinical trials including Hashimoto's and hypothyroid patients and medical professionals concluded that it may be a viable treatment to help lower antibodies. That would be certain confirmation. Elderberry extract binds to the tiny spikes on a virus protein that are used … I take my T4 at bedtime so, I start drinking Poland Spring after dinner and definitely use it to flush down. I, just by chance, read something about elderberry and autoimmune diseases. Other drugs that have the same active ingredients (e.g. basically it gave me panic attacks the next day, and I didn't think it was linked to that until I looked up the ingredients online. As an antioxidant, anthocyanin works by clearing the body of free radicals that damage cells at the DNA level.1 It also has antiviral properties that may prevent or reduce the severity of certain common infections. However, elderberry may help to treat inflammation, curb pain, and ward off depression, which are symptoms that people with Hashimoto’s experience. Bottom Line/Health: For millions of women with Hashimoto’s disease, the doctors give them hormone replacement and consider the job done. I normally don't respond because all the good advise on here is just so awesome! Production of inflammatory cytokines (IL-1 beta, TNF-alpha, IL-6, IL-8) was significantly increased, mostly by the Sambucol Black Elderberry Extract (2-45 fold), as compared to LPS, a known monocyte activator (3.6-10.7 fold). MedlinePlus suggests that this is due to the high concentration of iodine that may exceed what is … The cooked elderberry fruit seems to be safe, but … Registered number: 10004395 Registered office: Fulford Grange, Micklefield Lane, Rawdon, Leeds, LS19 6BA. All rights reserved. Diet plays an important role when it comes to caring for the thyroid. Elderberry should not be used in place of medication prescribed for you by your doctor. Start now. We study 7,679 people who take Levothroid or Elderberry. but I do know that's strong stuff and unless you know the dosage and how to take it. I'll post again in a few weeks and see if there is any improvement. If your thyroid medication isn’t working well, there could be a couple reasons why. Symptoms were relieved on average 4 days earlier and use of rescue medication was significantly less in those receiving elderberry extract compared with placebo. You should be on medication if you have Graves’ and I have a basal body temperature tracking chart at the patient resources link and this is something that I recommend for anyone with hypothyroid, is to check your … Thyroid Disorders Message Board HealthBoards; Endocrine > Thyroid Disorders > Black Elderberry - yay or nay if you have Hashi's? Most warnings on the web are theoretical, without evidence of adverse reactions. I never thought to attribute those symptoms to taking elderberry. You’ll need to review your eating habits and try to improve them as much as possible. as being in breach of those terms. By design, clinical trials use only a small and selected set of people, and are conducted in a highly controlled environment. Patients can bring a copy of the report to their healthcare provider to ensure that all drug risks and benefits are fully discussed and understood. On eHealthMe, our answer is simple: run your own phase IV clinical trial. Black Elderberry - yay or nay if you have Hashi's? Curiously, my first day on elderberry yesterday I began to come down with a horrible cold which has continued into today. Bladderwrack is a seaweed harvested for medicinal purposes. I researched and found out later that people with Hashimoto's should avoid anything that would stimulate the immune system to attack. We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in A study for a 56 year old woman who takes Chantix, A study for a 38 year old woman who takes Pradaxa, Citalopram Hydrobromide, A study for a 38 year old woman who takes Zestril, Provigil, A study for a 36 year old man who takes Marijuana, A study for a 34 year old woman who takes Omeprazole. I hadn't realised that this could be the cause of my troubles. Thank you Melissa for replying. Which typically means the brain fog increases, the muscle/joint pain, terrible terrible fatigue. The truth is that we're all exposed to viruses, some more virulent than others. Do not take American Elder, Black Elder, Blueberry Elder, Canary Island Elder, Sambucus spp, or Velvet Elder if you are allergic to elderberry or any ingredients contained in this drug. © Patient Platform Limited. In addition to black elderberry, there are several other varieties available as well. WARNING: Please DO NOT STOP MEDICATIONS without first consulting a physician since doing so could be hazardous to your health. I have had either 5 bad colds or one really long one over the last six months. Inflammatory cytokines. A 2008 study in the "International Journal of Endocrinology and Metabolism" suggests that vitamin C helps thyroid medicines work better 3.Check with your health-care practitioner before taking any supplements with thyroid medication; food, vitamins and medication … Personalize this study to your gender and age (0-99+), and then find any serious effects. … Too much thyroid hormone can kill you and result in death or being rushed to the emergency room. Some of the most common include: Black lace elderberry; Red elderberry; Adams elderberry; Lemon lace elderberry Pharmaceutical companies and the FDA run phase IV trials to see how drugs do to the public. The cooked elderberry fruit seems to be safe, but … In case of overdose, get medical help or contact a Poison Control Center … For many generations herbalists have used cooked elderberries as healing agent. For many years the only thyroid medication I have taken is Nature-Throid. Can't say for sure if it caused them, but I do know that I felt better after I stopped taking elderberry. Here are some articles I think you might find helpful: There are no regulated manufacturing standards in place for many herbal compounds and some marketed supplements have been found to be contaminated with toxic metals or … it's such a pain to live with thyroid problem. DISCLAIMER: All material available on eHealthMe.com is for informational purposes only, and is not a substitute for medical advice, diagnosis, or treatment provided by a qualified healthcare provider. Elderberry is POSSIBLY UNSAFE when the leaves, stems, unripened fruit, or uncooked fruit is consumed. The elderberry is a blue-black berry from trees or shrubs belonging to the genus Sambucus.. i have hashimotos disease and I've been taking elderberry for about six months. Start now, it's free and anonymous. There is no drug interaction reported. The most striking increase was noted in TNF-alpha production (44.9 fold). It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, … I myself have never taken elderberry with my Hashi's, but I do know that you shouldn't take things that make the immune system stronger because the stronger your immune system, than the stronger the attack would be on your thyroid and damage will come at a more considerable rate than with a weaker immune system. The swelling in my nasal cavities were so bad I thought I had sleep apnea. Here, we’ll talk about why these things can affect your thyroid medication… Elderberry is often sold as an herbal supplement. If you use this eHealthMe study on publication, please acknowledge it with a citation: study title, URL, accessed date. It is often used in hypothyroidism. I did read that thyroid hormone replacement needs an acidic environment to be properly metabolized. I have absolutely heard the theory that it can overdrive the immune system, and I understand it in theory, however I have never actually heard of users experiencing this personally. Elderberry has active ingredients of american elder.
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